Mal de Parkinson, Org.
For English site go to: ElenaTuero.com
Creado por una victima con este mal
            info@maldeparkinson.org            

Hojas Informativas
Parkinson's Disease Foundation-PDF.org

Las hojas informativas a continuación ofrecen consejos e información sobre temas muy específicos e importantes para vivir bien con la enfermedad de Parkinson. Continuaremos actualizando esta sección con más hojas informativas; visítenos con regularidad. 


La Comprensión de la Enfermedad de Parkinson

Información General

Síntomas No-Motrices

El Tratamiento de la Enfermedad de Parkinson

Vivir con la Enfermedad de Parkinson

El Empleo, El Seguro, Ayuda Financiera y Asuntos Legales

El Cuidado y Apoyo Familiar

 _____________________________________________________________________________



   Preguntele a Elena




La siguiente son cartas de preguntas q le pueden orienta, no tengo grado de medicina, solo contesto por experiiencia propia de 26 anos viviendo con esta enfermedad.  

Siempre consulte con su medico.


Mal de Parkinson's favorite blog entries:
Nov 18 - Para lachiva77, Elizabetha
Nov 18 - historia medica.jpg
Nov 8 - PARA ELENA TUERO.
Nov 8 - hola TERE.
Nov 8 - NO HAY QUE PERDER LAS GANAS DE VIVIR NUNCA.
Aug 30 - No se si se comprendió....
Aug 24 - MOMENTOS DIFICILES
Aug 19 - alucinaçoes
Aug 3 - CUIDADO !!!!!!!!
Jul 14 - Hola
Jun 21 - Celulas Madre
Jun 10 - saludos y ayuda...!!!!!
May 26 - Implante de electrodos y celulas madre en PERU
May 19 - saludos
May 11 - FACTOR DE TRANSFERENCIA (?)
Apr 30 - PODRIA ALGUIEN EXPLICARME..
Apr 17 - Calores intensos
Apr 16 - ALGUIEN SABE?
Apr 16 - Consejo al que piensan operarce-Administadora
Apr 15 - SALUDOS
Apr 14 - quien sabe algo autoimplante celulas madre?
Apr 14 - malde Parkinson
Mar 27 - Favor
Feb 23 - Mensajes a los mienbros
Feb 13 - Hermanos/as
Feb 11 - NECESITO AYUDA URGENTE
Dec 10 - Mirapex
Dec 2 - DOLOR
Nov 19 - Momentos dificiles para mi
Nov 19 - MIS PINTURAS
Oct 28 - paliativos de sintomas
Aug 19 - Tu apoyo
Jul 31 - SOY YO
May 16 - En Cuba ya tienen el Parkinson controlado!
Mar 5 - UN ABRAZO QUE CURA
Mar 1 - Re: HOLA MI MA TIENE YA MS DE 20 AÑOS
Feb 25 - Solo tengo 25 anos
Feb 24 - LA VERDAD ES QUE NO ME CONECTO HABITUALMENTE
Feb 24 - hola
Jan 27 - HOLA MI MA TIENE YA MS DE 20 AÑOS
Dec 27 - A woman of great courage.wps
Nov 13 - Samento
Nov 3 - rifa-llenar y enviar
Oct 30 - Necesito informacion
Sep 27 - Consulta
Sep 24 - informacion
Sep 12 - CHAT
Aug 21 - lesion
Aug 19 - Necesito Informacion
Aug 19 - Parkinson Benefit.doc
Aug 19 - The Star.doc
Aug 19 - tritownarticle1-29-2004.doc
Aug 19 - apda fall04 newsletter.pdf
Pregunta:

MI HERMANA DE 70 AÑOS DE EDAD TIENE MAL DE PARKISON DESDE HACE 10 AÑOS LA ESTAN TRANDO CON LEVADOPA CARDIDOPA Y LEVADOPA CARDIDOPA ENTECAPONE

QUIERO SABER SI HAY ALGUN MEDICAMENTO PARA EL MAL DE PARKINSO DE MEDICINA HOMEOPATICA O ALTERNATICA

ME GUSTARIA MUCHO PORDE OBTENER ESTA INFORMACION

 REspuesta

gRACIAS POR ESCRIBIRME
 
mencionas:  LEVADOPA CARDIDOPA Y LEVADOPA CARDIDOPA ENTECAPONE, asegurate que no este consumiendo mucho LEVADOPA CARDIDOPA. Preguntale a su medico.
 
Aqui te mando un articulo de una sede de buen prestigiio, era en Ingles y lo traduje asi que perdona la autographia.
 

Ayurvédicos     medicina -- Esto se  ha practicado en la India durante 5000 años. Los síntomas de Parkinson se mencionan en     texto antiguo con el nombre de Kampavata. Ayurvédicos     la medicina es un sistema completo poniendo énfasis en la igualdad de dieta, ejercicio,     la meditación, masajes y hierbas. Una hierba tal, Mucuna Puriens, está ganando     atención en los círculos convencionales como sus efectos imitar Levodopa sintéticas, con     menos efectos secundarios.

Habas
--     Los investigadores australianos descubrieron que las habas son también una muy     fuente natural efectiva de L-dopa. La mayor concentración de L-dopa es     se encuentra en la vaina, por lo que son más eficaces cuando se consume todo.
Hierba de San Juan- La dopamina influye en los sentimientos positivos en el cerebro, y desde el     los niveles de dopamina son bajos en los pacientes de Parkinson, la depresión es a menudo un síntoma.     St John's Wort es una hierba que se ha utilizado en Europa durante muchos años. Se ha     ha demostrado ser eficaz en aliviar la depresión y el insomnio.

La toxina botulínica A
- Esta es una bacteria que causa la intoxicación alimentaria (botulismo), pero ha     demostrado ser eficaz en la reducción de la mano, la cabeza y temblores de voz cuando, en una débil     solución.

Coenzima Q10 (CoQ10)
- Esto ha sido demostrado tener un efecto sobre los síntomas de la     La enfermedad de Parkinson, sin embargo, no está claro si realmente disminuye la     la enfermedad o, simplemente, alivia los síntomas temporalmente. El inconveniente es la enorme     dosis requerida. La dosis eficaz es de aproximadamente 1.200 miligramos al día, así     por encima de los 60 a 90 miligramos recomendados por un tratamiento alternativo muchos     defensores.

Acupuntura
--     Utilizado durante siglos en China para corregir las alteraciones de la energía en el cuerpo. Se ha     convertido en un método popular de tratamiento para los enfermos de Parkinson en todo el mundo.     Hasta el momento no hay estudios controlados con placebo demuestran que la acupuntura puede tratar     los síntomas motores de control de la enfermedad, pero hay cierta evidencia de que     puede ayudar con los trastornos del sueño. Hay mucha evidencia anecdótica para sugerir     de que puede ser eficaz para aumentar las sensaciones de bienestar y relajación.

Masajista
--     Aunque no directamente el tratamiento de los síntomas, puede ayudar a reducir algunos de los     las molestias asociadas con la rigidez muscular que es comúnmente experimentado por los pacientes.


Los tratamientos alternativos para muchas enfermedades     van y vienen. Algunos puesto de moda durante un tiempo sólo para ser desacreditado     y descartado. Otros acumulan un creciente cuerpo de científicos y de divulgación     apoyar. Es en gran medida, simplemente una cuestión de ensayo y error. Mayoría     Los tratamientos alternativos son inofensivos, pero algunos remedios herbales pueden interferir     con la medicación, así que asegúrese de consultar a su profesional de la salud.


ESPERO HABERTE AYUDADO

 

 Consulta

LOS SALUDO CORDIALMENTE TENGO 58 AÑOS TENGO 4 AÑOS CON EL MAL DE PARKINSON LLEVO MI ENFERMEDAD HACIENDO TERAPIA TOMANDOME MI SINEMET Y MIRAPEX.VIVO EN VENEZUELA, CON ESTA ENFERMEDAD HAY QUE SER POSITIVO SIEMPRE MIRANDO HACIA HA DE LANTE, ME COMENSO DEJANDO EL BRAZO IZQUIERDO INMOBLI Y LA PIERNA TAMBIEN PERDIA EL EQUILIBRIO, DIFICULTA PARA CAMINAR, LENTO FUI AL NEUROLOGO Y ME DIJERON QUE TENIA EL MAL DE PARKINSON ME PUSE MUY TRISTE PERO EL SICOLOGO ME HEYUDO MUCHO.

 consejo

Sabes que a mi me ayuda mucho, y me da mas estabilidad y confianza el andar con un baston! antes me caia mucho pero con el baston la gente y los carros le tienen mas consideracion a uno.
 
gracias por compartir tu dilema!

 

 

consulta

Hola Elena, gracias por esta pagina tan importantisima, tengo una inquitud, a mi madre le comezó un leve movimiento en la mano y le diagnosticaron EP en Cartagena Colombia, tiene su tratamiento con Levodopa/Cardilopa, y ha dejado de temblar, su problema hoy es en la cabeza, dice sentirse una presión fuerte como si le colocaran un casco de hierro y lo presionaran fuerte igual que el cuelo, se siente con la cabeza separada del cuerpo, y cuando esta asi no puede hacer nada tiene que estar sentada, y ya es casi todo el dia, mi pregunta ,ya que tu tienes conocimiento de esta enfermedad, esto si hace parte de la EP, y que sugerencia me das, agradesco tu respuesta por que ya estamos bastante desesperados y no encontramos solución para ese mal, muchas gracias. 

  RESPUESTA

No hay un patron para esta enfermedad, ataca de diferentes maneras, lo que pueden hacer es que se acostumbre ha entrenerse tanto mentalmente como fisicamente, ya sea bailando, cantando, un habito nuevo al cual le ponga activa para que no este pendiente de los sintomas de este mal. Y muy importante paciencia (no la apuren) y mucho amor.

     



 

JERSEY; As the New Year Unfolds, a Reason for Hope

By NEIL GENZLINGER
Published: January 04, 2004

ELENA TUERO has about 50 paintings hanging on the walls of the small room in her house that she calls her studio, all painted in the last six months. She has, for the moment, run out of wall space, and out of canvases as well.

Forgive her this painting frenzy; she is making up for a lot of lost time. Years of it, lost to the ravages of Parkinson's disease.

Ms. Tuero is a young woman, just 44, but since age 27 she has been fighting against Parkinson's, a chronic and progressive disorder usually associated with people much older. It began quietly enough, back when she was working as an accounting clerk.

''I started making a lot of mistakes,'' she said in an interview at her home in Freehold. ''I couldn't figure out why. I was so good at it.''

It was the beginning of the tremors that are the most familiar symptom of Parkinson's. ''One day my friend noticed my leg was shaking,'' she recalled. ''That's when I started worrying, when people began noticing.''

A doctor diagnosed Parkinson's, telling her she was the youngest patient he had ever seen. It is a cruel condition that affects the area of the brain involved in movement and coordination. In addition to the tremors, it can cause limbs to grow rigid and can impair balance. And it gets worse over time.

A year ago, Ms. Tuero said, her hand use, speech and ability to walk were pretty much gone. She shook so much that she once kneed herself in the nose. When the phone or doorbell rang, she would panic at the thought of trying to answer. Her independence was vanishing.

''I wasn't able to feed myself, I wasn't able to cook,'' she said. ''You have your pride. You want to do things for yourself, but you can't.''

Then, in June, she took a chance on a relatively new surgery called deep brain stimulation. It's not for all Parkinson's patients; for one thing, it's a grueling operation, requiring, in Ms. Tuero's case, six hours of open brain surgery through which she had to remain conscious. And it is not a cure. But it can help Parkinson's sufferers regain some of what they have lost.

The surgery, which was done under the guidance of Dr. Anette Nieves at Robert Wood Johnson University Hospital, involves placing electrodes in the brain and running wires down under the collarbone to attach to a pacemakerlike device. And for Ms. Tuero, it worked a miracle.

Now her speech, though slightly slurred, is back. She can walk fairly well. And, much to her surprise, she can paint.

''I saw a picture of a picture, and I said, 'I'm going to paint that,''' she recalled of the moment shortly after the surgery when she decided to see just what her once-useless hands could do. She bought some canvases and paints on eBay and gave it a try. First a white vase against a red and pink background. Then a fat ballerina. Then an outpouring of flowers, people, cats, abstracts, some of them copies of works by masters like Picasso, others original.

The paintings are pretty good, and the therapeutic value is incalculable. Ms. Tuero is especially happy to be able to show a different side of herself to her daughters Tiffany, 14, and Vanessa, 13, who were born early in the course of her Parkinson's, and whom she has raised for most of those years as a single mother, even while struggling with the disease.

''I don't really remember seeing my mom well,'' Vanessa said. ''I just remember seeing her sick.''

Ms. Tuero said that for years she avoided going to her children's school activities so as not to embarrass them with her physical condition. It depressed her, she said, that the girls had no defining image of her that wasn't dominated by Parkinson's, but since the surgery that has changed.

''Now they say, 'My mother's an artist,''' she said. ''They say it with such pride.''

Ms. Tuero, who came to the United States from Peru when she was 13, knows that the long road she is traveling has more rough spots ahead. Just how permanent the benefits of deep brain stimulation are remains unclear.

''I'm not cured,'' she said. ''The Parkinson's will still progress. I don't know what this will lead me to. We'll see.''

But for the moment she is enjoying the recovery of abilities she thought were gone, and is getting pleasure from giving her paintings to people who have helped her over the years. Her New Year's resolution, she said, is this: ''To inspire whoever needs inspiration. To tell them there's always hope.''




 

Two years ago Elena Tuero, now 44, was ready to die Mom struggled to get life in focus
Asbury Park Press - Asbury Park, N.J.
Author: JOAN MARSHALL
Date: Jan 29, 2004
Start Page: 1
Section: N
Text Word Count: 840
Document Text

Elena Tuero focuses on the beauty of life.

And one way she does is by capturing moments of life in the paintings that fill her small studio in her Freehold Township home.

Two years ago, Tuero, 44, was ready to die.

She had battled Parkinson's disease since she was 28 and the symptoms, which include uncontrolled movements and tremors, had overwhelmed her.

"I couldn't sleep, I couldn't eat," Tuero said. "It made me very sad for my kids to see me like that. I wanted them to let me go when the time came."

Her daughters Tiffany Olivera, now 15, and Vanessa Olivera, now 13, also thought she was dying.

"I used to cry every night thinking she would go away forever," recalled Vanessa, now an eighth-grader at Dwight D. Eisenhower Middle School. "I wanted to be with her more often."

Her eldest daughter Gisselle Garces, 23, is now married and living in New York City.

But after Tuero underwent a surgical procedure called Deep Brain Stimulation (DBS) at Robert Wood Johnson University Hospital in New Brunswick last year, her life changed for the better.

According to the hospital's news release, DBS offers relief from tremors, rigidity and slowness of movements associated with Parkinson's by implanting electrodes in the brain. The electrodes deliver electrical impulses that block the brain from its abnormal activities that caused the debilitating symptoms.

Tuero was awake during the six-hour surgery on June 26. She had to be awake to allow the surgical team to assess her brain functions, Tuero said.

She hesitated at first to undergo the surgery because a fetal cell transplant operation in 1996 failed. Fetal cell transplant was an experimental treatment for Parkinson's in which holes were drilled in the skull and cells from aborted fetuses were implanted in the brain, according to the New England Journal of Medicine.

Tuero was one of 40 "guinea pigs" that underwent the surgery, she said.

But Tuero said neurosurgeon Anette Nieves gave her faith and hope while explaining how DBS could help her condition.

"She was saying the words I wanted to hear," Tuero said. "She said I would not shake anymore."

After the surgery, Tuero woke up feeling like "Jesus Christ when the cross was relieved from Him."

Tuero is not cured, she said, but after years of physical and mental distress she feels what it is like to live again.

One day in September, while her younger daughters were at school, she decided to copy a picture she saw in a magazine. She bought acrylic paint and a brush, took lessons at the Around the Corner Art Center in Freehold, and has not stopped painting since.

Tuero expresses her new love for life through her paintings, which mostly are of flowers and nature in oils or acrylics.

But she said her paintings of chubby ballet and salsa dancers set her portfolio apart.

"My mom likes to take credit for drawing fat people because she said it's always the skinny ones that you see on paintings," Vanessa said.

Tuero was divorced from her husband Sergio in 2000 after 10 years of marriage. She said her illness had put a strain on their relationship.

Tiffany, now a freshman at Freehold High School, was born in 1989 during the onset of her mother's disease. Vanessa was born in 1990.

"I wanted to have more children because I wanted Gisselle to have sisters and before my disease got worse," Tuero said.

As she battled Parkinson's, Tuero suffered from depression even attempting suicide by ingesting about 30 Benadryl pills. Tiffany and Vanessa, then 7 and 6, found her semi-conscious in her bedroom.

"I realized how selfish I was," Tuero said. "My mother told me no one would take care of my children the way I would and that I better be around for them."

Tuero became more involved in her children's lives and attended school events. But the students often would make fun of her, she said. Tiffany and Vanessa were hurt by their classmates' reactions.

"I would tell my daughters, `Don't blame the kids because they don't know what's going on with me,'" Tuero said.

"When we go out and people stare, I just say 'Can I help you? My mom's sick, OK,'" Tiffany said.

The girls excelled in school as a way to escape the sadness at home, Tiffany said. Still, the sisters and Tuero found a light way to deal with the disease.

"When my mom couldn't dress herself and she needed help, she would tell us 'Pretend I'm your Barbie doll,'" Vanessa said.

To help their mother walk, they would hold her at each side and they would sing "We're Off to See the Wizard" from the movie "The Wizard of Oz."

And their mother didn't have to rock them to sleep, Vanessa said. She would just hold them in her arms and "shake" them to sleep.

"When I tell my classmates about Parkinson's disease, they would say it's so sad, but I don't think so," Vanessa said.

Joan Marshall: (732) 308-7752 or jmarshall@app.com

Abstract (Document Summary)

According to the hospital's news release, DBS offers relief from tremors, rigidity and slowness of movements associated with Parkinson's by implanting electrodes in the brain. Fetal cell transplant was an experimental treatment for Parkinson's in which holes were drilled in the skull and cells from aborted fetuses were implanted in the brain, according to the New England Journal of Medicine.

Healing the Brain
In May 1995, neurologist Curt Freed began one of the most dramatic experiments in the history of medicine: the attempt to treat sufferers of Parkinson's disease by grafting human stem cells into their brains.

Of the forty patients who volunteered for Freed's new treatment, half underwent authentic surgery. The other half, who had received placebo surgery, felt their last hope dissolve into bitter frustration. But the hardest road lay ahead for those who had been given the highly experimental procedure. Healing the Brain captures the emotional events that unfolded in the months afterward as Freed, his researchers, and their courageous, desperate patients awaited the outcome and witnessed a moral debate unfolding across the nation over embryonic stem-cell medicine. Would the brain regenerate itself or reject the new cells? This pioneering team was willing to take perilous risks to find out.

Healing the Brain is a moving, fascinating narrative about discovery and disillusionment, conflict and compassion, suffering and -- for some -- amazing success.
  

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EN ESTA POSTAL USARON UNOS DE MIS CUADROS Y UN REFRAN QUE USE.

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